The Granville Angels Foundation
Current Events
2nd Annual
Cornhole For A Cause!
Date: Saturday, September 14th, 2024, 12-4pm
Join us for our 2nd Annual Cornhole for a Cause benefitting John, Sophia, and all those individuals living with Angelman Syndrome as we raise funds for critical research and therapies.This free family friendly event will have bounce houses, face painting, dump truck races, silent auction, and much more!!!!
Together, we can cure Angelman Syndrome.
The Granville Angels Foundation
The Granville Angels Foundation is a collection of friends and family in the Granville Ohio area who are committed to raising awareness, support, and critical funds for Angelman Syndrome research.
Our 'Angels'
John and Sophia
John and Sophia are two beautiful souls who live in Granville Ohio and share something very uncommon in life. They both have Angelman Syndrome, a rare genetic syndrome which affects around 1 in 15,000 people. Angleman Syndrome touches every aspect of their lives as well as their families lives. John and Sophia did not ask for this, but their families are committed to FIGHT for them, for a cure, and for improved therapies so they may live a healthy and meaningful life.
What is Angelman Syndrome?
Angelman Syndrome was first diagnosed by Dr. Harry Angelman in the 1960's. Through advancements in technology, scientists have found that Angelman syndrome is a single-gene disorder caused by a loss of function in the UBE3A gene on the maternal 15th chromosome. "Angels" suffer from the inability to speak, sleeplessness, seizures, epilepsy, relationship difficulties, hyperactivity, constipation, sensory needs, & wandering.Despite these challenges, Angels are some of the happiest, most joyful souls that you will be around. They have the ability to bring a smile to your face in spite of their daily challenges. That said, the stress and burden that families go through to care for their Angels can be exhausting. Angels require daily therapy, are prone to accidents, and require lifelong care.With your help we can help create a different future for these Angels!! The organizations we support are on the cusp of several approved therapies that could help countless families and Angels live more independent lives.
Organizations we support
Foundation for Angelman Syndrome Therapuetics(FAST)
FAST is the leading patient advocacy organization working to cure Angelman syndrome. As the largest non-governmental funder of Angelman syndrome research in the world, our goal is to drive forward transformative research and development programs as quickly as possible for those living with Angelman syndrome — regardless of age or genotype.
Angelman Syndrome Foundation
The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.
Advocacy!
Our leaders have spoken to various community organizations, traveled to Washington, D.C. to meet with representatives, and fundraised for the labs that put FDA trials into action.But ultimately we need your help to reach our goal of finding a cure for our Angels!
Want to stay up to date with our Angels and their progress??
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